Talking to your doctor 
about LISRAYA

How to talk to your doctor about LISRAYA

HCP Explainer Video | How to Talk to Your Doctor

View Transcript: Talk to Your Doctor Close Transcript: Talk to Your Doctor

1
00:00:03 –> 00:00:06
Hi, my name is Dr. Iazsmin Bauer Ventura.
2
00:00:06 –> 00:00:10
I am a board-certified adult rheumatologist at the University of Chicago Medicine,
3
00:00:11 –> 00:00:15
where I serve as the director of the myositis program and a member of the
4
00:00:15 –> 00:00:17
multidisciplinary interstitial lung disease team.
5
00:00:17 –> 00:00:21
I’m an expert in treating and diagnosing dermatomyositis.
6
00:00:21 –> 00:00:25
One thing I always encourage patients to remember is that conversations with your
7
00:00:25 –> 00:00:28
doctor are incredibly important, especially when considering a new treatment
8
00:00:29 –> 00:00:32
option. If you decide to speak with your doctor about LISRAYA, there are a few
9
00:00:32 –> 00:00:35
things that can help you make the conversation as productive as possible.
10
00:00:36 –> 00:00:41
First, come prepared. Spend some time thinking about what parts of your disease are
11
00:00:41 –> 00:00:43
mostly affecting your life right now.
12
00:00:43 –> 00:00:47
For some people, that may be feeling weak or noticing that daily physical
13
00:00:47 –> 00:00:50
activities have gotten really difficult to do.
14
00:00:50 –> 00:00:55
For others, it may be persistent rash, anxiousness, fatigue, pain, or emotional
15
00:00:55 –> 00:00:57
impact of living with a chronic illness.
16
00:00:58 –> 00:01:02
It’s also important to talk honestly about the treatments you have tried or you’re
17
00:01:02 –> 00:01:05
currently taking and how they are affecting you.
18
00:01:05 –> 00:01:09
I found that many of my patients with dermatomyositis, or DM, continue to
19
00:01:09 –> 00:01:14
experience symptoms related to dermatomyositis despite the fact they’re currently
20
00:01:14 –> 00:01:18
on treatment. Since LISRAYA can help many people with dermatomyositis
21
00:01:19 –> 00:01:22
significantly reduce their reliance on steroids while still improving their
22
00:01:22 –> 00:01:27
disease, sharing those experiences with your doctor can help guide a thoughtful
23
00:01:27 –> 00:01:31
discussion about whether LISRAYA might be an appropriate option for you.
24
00:01:31 –> 00:01:34
Second, be open and direct during your visit.
25
00:01:34 –> 00:01:37
It’s completely reasonable to say something like, “I’ve been reading about
26
00:01:38 –> 00:01:41
LISRAYA . Is that something we can consider for me and my situation right now?”
27
00:01:42 –> 00:01:45
Finally, don’t hesitate to ask questions.
28
00:01:45 –> 00:01:49
LISRAYA has potential risks and side effects that are really important to
29
00:01:49 –> 00:01:53
understand. You can ask your doctor, “What should I know about the box warning and
30
00:01:54 –> 00:01:59
potential risks associated with LISRAYA?” Your doctor can help explain what those
31
00:01:59 –> 00:02:01
risks may mean for you personally.
32
00:02:01 –> 00:02:05
You can also ask how LISRAYA might fit in your current treatment plan.
33
00:02:05 –> 00:02:09
Remember, you don’t need to have all the answers before walking into the
34
00:02:09 –> 00:02:14
appointment, but a little preparation can go a long way in helping you to start a
35
00:02:14 –> 00:02:14
conversation with
36
00:02:15 –> 00:02:16
your doctor.
37
00:02:16 –> 00:02:18
LISRAYA can lower your ability to fight infections.
38
00:02:19 –> 00:02:21
Before treatment, test for TB and do blood work.
39
00:02:22 –> 00:02:26
Serious infections, cancers, heart attack, stroke, blood clots, and death have
40
00:02:26 –> 00:02:30
occurred. Tell your doctor if you’ve had these events, infection, Hep B or C,
41
00:02:30 –> 00:02:35
smoked, are pregnant or planning. Don’t take if allergic or have an infection.

Some questions to ask your doctor about LISRAYA

Starting a new treatment is an important decision you make in partnership with your doctor. 
Here’s a helpful list of questions to ask at your next appointment.

  • Is LISRAYA a potential treatment option for my dermatomyositis?
  • Could LISRAYA help improve my muscle symptoms and physical function?
  • Could LISRAYA help improve my skin rash?
  • Could LISRAYA help reduce my steroid use?
  • If I like my current DM medication(s), can I keep taking them alongside LISRAYA?
  • What should I know about the potential risks of LISRAYA?

Find a Specialist

Locate a physician near you with dermatomyositis expertise.
Find a Specialist
Back to Top